Caring for someone with frontotemporal dementia: Pro care

 If you’re caring for someone with frontotemporal dementia (FTD), you may sooner or later come to the realization that it requires more than just home care medical supplies – something more along the lines of professional care. There are three main options for assistance and supervision at home with daily living activities such as bathing and dressing; home care, palliative care, and hospice care.

Frontotemporal dementia professional care options

Home care


It includes caregiving services of both the medical and non-medical varieties provided at home. Aides, homemakers, chore workers, home care aides, therapists, registered nurses, and others may visit your home anywhere from a few hours to 24/7 to provide such services as:

·         Household chores.

·         Bathing.

·         Dressing.

·         Toileting.

·         Cooking.

·         Cleaning.

·         Speech and cognitive therapy.

·         Administering medications.

·         Monitoring vital signs.

·         Wound dressing.

Medicare doesn’t usually cover long-term care but may help pay for skilled nursing or home care.

How to chose

The first step is to establish which services you need. Ask your doctor, nurse or social worker for help you ascertain your needs. home care agencies, registries of independent contractors, and privately employed independent providers are among the entities that offer home care services. Compare and contrast quality of care, availability of needed services, personnel training and expertise, and health insurance coverage.


·         CareGuide@Home

·         Comparison on Home Health Agencies in Your Area

·         Next Step in Care

Palliative care


It focuses on managing symptoms, preventing and relieving discomfort, and improving quality of life.

How to chose

Palliative care services are often provided at home or in a residential facility because most hospitals lack the proper environment for longer term care. FTD patients tend to be younger than people with other types of dementia, so the caregiver should make sure the setting in which palliative care is administered is age-appropriate. Similarly, the road from FTD diagnosis to death tends to be shorter, so end-of-life decisions should be discussed and made as early as possible.


·         Find a hospital in your area that provides palliative care

·         National Hospice and Palliative Care Organization

·         American Academy of Hospice and Palliative Medicine

·         UCSF’s Palliative Care Service (PCS)

·         Next Step in Care

Hospice care


It offers palliative care to alleviate the suffering and better the quality of life of patients who have six months or less to live. As with palliative care, it is provided at home, at an assisted living facility, or at a nursing facility or at a hospital.

How to chose

Write an assessment of your particular situation – your medical care team and relatives can assist you in this endeavor. This will help you narrow down the options to those that fit your needs. These needs and the services you require should be discussed among hospice workers, doctor, family, and of course the patient. During this pow wow you may ask about the following:

·         The hospice’s expectations from the patient and the patient’s support system.

·         Support and training programs the hospice may have for caregivers.

·         Bereavement support programs.

Hospice care services are covered by:

·         Medicare for patients with a prognosis of six months or less.

·         Medicaid in most states.

·         Many private health insurance policies and HMOs.

·         TRICARE.


·         End of Life Issues: Hospice Care

·         Locate Hospice Providers in the US and Canada

·         National Hospice and Palliative Care Organization

·         American Academy of Hospice and Palliative Medicine

·         Next Step in Care


Related: End-of-Life: Do you devise your own demise?